In
the beginning....
October 1995 Our fund raising efforts began as an idea from our good
neighbors and their children. They had watched us in our journey with
Sophie's start in life, and wanted to help. Here is their story: The
"One in a
Million Kid"
Fund project began after reading
about the Points of Light Foundation, "Make a Difference Day" in "USA
Week-End Magazine". I immediately wanted to participate and instantly
knew what I wanted to do. Three years ago a lovely family, Rick and
Jody Prunty moved next door to mine. Twenty-two months ago, after four
miscarriages, their dream came true and her name was Sophie!
The months that followed her birth and the reality of her diagnosis
of Motor-Sensory Neuropathy Type II, at the Mayo Clinic presented enormous
challenges for the family. This "orphan disease" literally strikes only
one in a million children. There is no research, due to the rarity of
the disease and little, if any, is known about Sophie's prognosis. Additionally,
Sophie endured surgery to correct club feet and she is also motor skilled
delayed. But their courage, faith and absolute love for their daughter
has kept them determined to do everything possible to make Sophie's
life happy. I asked the family for permission to organize a "Make a
Difference Day" fund raiser for Sophie.
Next, I enlisted special friends, Michael, Kimberly
and my daughter, Katrina to be a part of the project. We named
our project the "One in
a Million
Kid" Fund
and met weekly to plan our strategy. First, we contacted the local press
and had stories about Sophie and her family, and our project printed
over the next two weeks. Next, Katrina organized 22 students from Oak
Park-River Forest High School to accept donations throughout the community
on October 28th. This was especially exciting to us because so often
teens are not viewed in a positive light. These kids certainly turned
that image around. These young people were enthusiastic and inspiring.
Our next idea was to ask local businesses to donate a portion of their
October 28th proceeds to the fund. Several students spent a week-end
delivering project information to local business owners. We encouraged
residents to shop locally to help Sophie. Also, my daughter Shauna was
accepting donations from her fellow soldiers at Ft. Lewis in Tacoma,
Washington on the 28th. Then, some great news! The King of Hearts Fund,
a Chicagoland charity donated $1000.00 to kick off the fund. We were
gaining momentum now!! A florist donated 500 carnations to exchange
for donations. Our tireless high school kids spent several days tying
blue and orange ribbons on which are their school colors. A local candy
company donated 150 packages of Gummy Bears to hand out. A local food
store donated containers for collecting donations. The OPRF student
council donated 40 tee shirts so our student volunteers could be easily
identified.
We couldn't believe the outpouring of generosity and support. Then,
the night before the big day, a resident called to tell us that 5 five-year-old
little girls in her day-care group were having a garage sale and were
planning on donating the proceeds to Sophie. What an inspiration! The
big day arrived and it was one that none of the participants will ever
forget. People were so kind and generous. Even though rain and cloudy
skies were predicted, not one drop of rain fell; in fact, the sun peeked
out in the afternoon. As of this writing, we have collected $3,000.00.
We believe this is just the beginning. Our goal is to raise enough funds
to send the Prunty family to the Option Institute in Sheffield, Mass.
The Option process is an individually designed for each child with special
needs, and to train parents in the development and execution of a home-based,
parent-directed program. In closing, thanks Points of Light Foundation
for bringing together teenagers, families, neighbors, friends, children,
soldiers and an entire community to show that through volunteering together
we can " Make a Difference" and accomplish anything!!!
The Prunty family hopes the fund will continue, and that one day they
will be able to help other special needs children and their families!
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